MEF HISTORY, ACTIVITIES, AND PEOPLE
History and Activities
MEF in Action
Lesson Impact: Student and Teacher Survivors
Who we are
History and Activities
The Melanoma Education Foundation is a non-profit preventive health organization that saves lives by promoting greater awareness of melanoma and the importance of early self-detection. The Foundation evolved from a father’s web site tribute to his son, Dan Fine of Peabody, who died of melanoma in 1998 at the age of 26, and was incorporated as a non-profit 501(c) (3) organization in Massachusetts in August, 2000.
In early 1999, the Foundation initiated services to Massachusetts North Shore high schools. With grants from the Perpetual Trust for Charitable Giving, Essex County Community Foundation, and Abbot and Dorothy Stevens Foundation an on-site training session, “Teaching High School Students About Skin Cancer,” was developed for health educators. The course, which includes a detailed one-session lesson plan, video, and all required student hand-outs, is registered with the Massachusetts Department of Education, allowing attending teachers to receive credit toward required Professional Development Points. Services were then extended to middle schools and to the states of Maine, New Hampshire, Rhode Island, Vermont, Nevada, and the Rochester New York area. By the end of the 2012 to 2013 school year the single session SkinCheck® class had been adopted by 1250 schools in 49 states.
In August, 2008 the Foundation completed two new student videos directed and co-produced by Emerson College graduate students Gary Ashwal and Catherine Yeh. The videos, "Should've, Could've, Would"ve" and "My Melanoma Vlog," received a 2009 Gold Triangle award from the American Academy of Dermatology. The MEF teacher-training video,"Teaching the SkinCheck Class," subsequently received an AAD 2010 Gold Triangle award.
In addition to the primary activity of educating health teachers and their students in high schools and middle school about melanoma the Foundation conducts numerous community outreach sessions at regional wellness events, public libraries, colleges, city employee sites, post offices, and service organizations such as Rotary and Kiwanis Clubs. Educational talks and facial sun damage screenings are also available to businesses.
The Foundation seeks to continue and expand high school and middle school educational services, to serve as a resource for health educators in the subject of skin cancer education, and to promote greater public awareness. Revenue for services is provided primarily by individual contributions, proceeds from special events, and grants from corporations and foundations.
Why we Support Education Rather than Research
A question that we are sometimes asked is why we decided to devote our resources to education rather than research. The answer goes back to 1998, shortly after my son Dan died of melanoma at the age of 26. It became apparent that his death, like most melanoma deaths, could have been prevented by early detection. As we learned more by communicating with family members of other melanoma victims it became apparent that most melanoma victims, like Dan, had not been educated about the disease until it was too late. Because melanoma risk jumps dramatically in the mid-20s age group, high schools are ideal venues for educating teens about melanoma but we found that most high school wellness teachers were also uneducated about melanoma and often did not include the subject in health classes at all.
Melanoma is unique among cancers. It is the easiest of all cancers to self-detect at an early stage when it is easily curable by simple excision in an outpatient setting. But when not caught early enough it is among the most malignant and incurable of all cancers.The deciding factor in our decision to focus on education rather than research was our passion to prevent Dan’s tragedy from happening to others and to see lives saved during our own lifetimes. Delayed or posthumous gratification was was not an attractive option. We thought about supporting research but it wasn’t at all clear to us who or what to support or that the limited financial support we could provide would make any difference. A bewildering array of research activities exist. Would we support genetics research aimed at elucidating the underlying pathways leading to melanoma? If so, what was the best choice? Even research on a subject as seemingly far afield as Zebra fish has yielded results that are relevant to melanoma. Would we support development of new medicines? Since pharmaceutical companies invent most new cancer medicines that wasn’t a realistic option. Would we support development of machines that could more rapidly determine the structure of genes and their associated proteins? All of these are worthy activities but we came to the conclusion that, although “research” sounds more exciting than education, our likelihood of saving even a single life by supporting research was slim. While it seems clear that the combined research of many will eventually result in a cure for melanoma it was also clear that hundreds of thousands of lives would likely be lost unnecessarily before a reliable and affordable cure is developed. The results of our high school and middle school program have reinforced our early decision to promote education rather than research. Middle school students, high school students, teachers, and visitors to this web site have found early melanomas that they said they would not have paid any attention to were it not for MEF educating them.
Health teacher workshop at
Dermascan screening at
Dermascan screening at
Michael Brown, Director of Nevada Chapter, speaking to students at Valley High School
Melanoma Survivors Adrianna Manzi (L) and Mary Gill (R)
Adrianna received the melanoma lesson while she was an 8th grade student at Kennedy Middle School in Woburn, Massachusetts. A few months later she noticed a changing mole on her wrist that was diagnosed as an early melanoma and successfully removed.
Paul received the melanoma lesson from health teacher Maria Spicher in the 11th grade while he was a student at McDowell High School in Erie, PA.
After the lesson he thought of a mole on his toe that had been there most of his life. For a few weeks prior to the lesson the mole had been getting darker and slighly larger but until then, he had never thought it was anything serious. Shortly after the lesson he had it removed; the pathology report indicated it was a severely atypical mole (pre-melanoma) that had a high probabilty of becoming cancerous.
Melanoma Survivor Tania Chrzanowski
Tania is a health teacher at South Hadley High School in Massachusetts. She attended a live MEF teacher-education session in 2006 and has been teaching the lesson since then. As a result, she became concerned about a changing mole on her arm and, in 2012, had it removed. The mole turned out to be an early melanoma. She believes the melanoma was caused by her tanning bed use starting as a teen in high school.
As a result of her experience she developed and now operates a part-time spray-tanning business. She is passionate about educating others about melanoma and especially to avoid tanning beds
Melanoma Survivor Cindi Eggemeyer
Cindi is a health teacher at Festus High School in Missouri who watched the MEF teacher-education video and started presenting the student lesson in 2012.
She became more aware of a scar on her leg that resulted from removal of a benign mole several years earlier but looked like the mole may have been returning. She also was concerned about a new spot that had appeared on her arm.
Both spots were excised; the one on her leg was a melanoma and the new spot on her arm was a possible melanoma (sometimes it is difficult for pathology to distinguish between a severely atypical mole and an early melanoma).
MEF president Steve Fine (3rd from L) at Gillette Stadium, Foxboro, June, 2013, with Andre Tippett, Vince Wilfork, and Tom Brady at New England Patriots Myra Kraft Community MVP Awards Ceremony.
July, 2008 preview and celebration of new student videos with (from L) Catherine Yeh, Steve Fine, Prof. Timothy Edgar, and Gary Ashwal. Emerson College graduate students Catherine and Gary directed and produced the videos with assistance from Prof Edgar and Steve. The videos received a 2009 Gold Triangle Award from the American Academy of Dermatology.
Audience at the Melanoma Education Foundation Comedy Night Dinner Show at Montvale Plaza, Stoneham in April 2013. The event was dedicated to the memory of Keri McCarthy of Somerville who died of melanoma in 2010 at age 35.
The comedians included Lenny Clarke, Dave Russo, and Artie Januario.
Directors and Officers
Cheryl, who lost her husband to a skin disease, serves as Clerk of the foundation and is an active participant in the annual MEF Calendar Raffle and in special events..
Debi is the MEF Corporate Development & Community Outreach Director and is responsible for developing revenue sources to expand free MEF services to schools nationwide and for community outreach in her area. She is the first MEF full-time employee; her husband, Steve, is a melanoma survivor. Debi is an incredibly high-energy, caring indivdual whose passion for melanoma education, sincerity, and empathy for others is is a great asset for MEF. On her own initiative she created, directs, and serves as co-host of the half-hour TV talk show, SkinTalk, that is broadcast in Western Massachusetts and elsewhere.
Steve is a melanoma survivor and an athlete. In addition to supporting MEF by raising funds for his participation in the New York City Marathon he initiated and served as event director of the annual "Check for Change" Triathlon held in August at Chicopee State Park, Massachusetts.
Steve is the founder, president, and primary health educator of the Melanoma Education Foundation. He lost his son, Daniel, to melanoma in 1998 at the age of 26 and started the foundation in 1999. On behalf of the foundation he has received many honors and awards inluding a Salem News "Great People Make Great Places," award, a 2008 Boston Celtics "Heros Among Us "award, a 2009 Peabody Chamber of Commerce Community Spirit Award, recognition as a 2011 Massachusetts General Hospital Cancer Center "The One Hundred" honoree, and a 2013 New England Patriots Myra Kraft Community MVP award.
Patty Clark Lamarre, Board Member
Patty is a melanoma survivor and a champion of melanoma awareness education. She has served on other non-profit boards and currently works at the Massachusetts Department of Transportation
Dean T. Ward, Corporate Outreach Director,
Dean is a Stage 3 melanoma survivor whose efforts have led to continuing corporate support of MEF by the GE Aircraft Engine Division Employees Good Neighbor Fund and through a GE Retiree Golf Tournament. He also connected MEF with the North Shore Cancer Association (formerly Lynn Cancer Association), which has provided major funding. Dean has presented numerous informational talks about melanoma. He and his wife, Kathleen Giadone, are active participants in the annual MEF calendar raffle and other activities..
Professional Advisory Board
|Cristi Barnett||Cristi is a Senior Vice President at the Boston office of Fleishman-Hillard, one of the five largest public relations/communications companies globally.|
|Arthur F. DiMattia, M.D.||Dermatology Associates of the North Shore, Peabody, MA|
|Philip S. Ellerin, M.D., F.A.A.D.||In addition to maintaining a practice in dermatology in Burlington, MA, Dr. Ellerin is Assistant Clinical Professor at Tufts University and is a Clinical Instructor at Boston Medical Center.|
|Alan C. Geller, MPH, RN||Alan is a Senior Lecturer at Harvard Univeristy School of Public Health.
He is a melanoma survivor with extensive expertise in melanoma statistics and public health initiatives for reducing the incidence and mortality of skin cancer.
Chris is Tax Manager at Baker Newman Noyes in NH.
|Hillary Mann||Hillary is Assistant Director, Marketing and Corporate Development, Harvard Business School and is also an expert in social media marketing.|
|Michelle Rozen||Michele is an accomplished communications and marketing executive with extensive experience in public relations. Her company is Michelle Rozen Communications.|
|Shari Sarnevitz||Shari, a school nurse at Marlehead Veterans Middle School in Marblehead, MA, lost her husband, Dana, to melanoma in 2004 at age 42 and is a long-standing member of MEF|
|Larry Schoen||Larry handles legal affairs for MEF. He is an attorney with the Boston firm of Mintz, Levin, Cohn, Ferris, Glovsky and Popeo, P.C. which has provided essential legal services to MEF. Larry lost his father, Joel, to melanoma in 1997 at age 57.|
|Renee, a senior at West Bridgewater Middle-Senior High School, lost her grandfather to melanoma in 2008. Over the past 3 years she developed a program "Melanoma Awareness: Educate, Demonstrate, Terminate" and develped a Facebook page with the same name to help spread her message. She also designed a sun-safety program that she presents to school-age children.|
The DeGen Family Fund
Susan and Charlie Erbafina
Steve and Debbie Facchetti
Drs. Fayne and Roger Frey
Mass Mutual Insurance
Annmarie and Robert McCarthy and Family
George and Julie Mosher Family Foundation
Monson Memorial Classic
The Jennifer Sweatman Fund
The Jennifer Linscott Tietgen Family Foundation
Renee and Larry Waters
Olympus Financial Advisors (NM)
Sue and John Zarba
Winnetu Oceanside Resort